Dear Parent/Legal Guardian:
Your child has installed or attempted to use Sickle Cell Disease Foundation of California’s (“SCDFC,” “we,” or “us”) VOICE Crisis Alert™ mobile application (the “App”). Because your child is younger than age 13, we are required by the Children’s Online Privacy Protection Act of 1998 (“COPPA”) to provide this notice and obtain your permission before we collect, use or disclose any personal information from your child. If you do not agree and provide consent through the form below, your child will not be able to use the App and the App will not collect, use or disclose any personal information from your child.
- blood type and genotype
- allergies and illnesses
- medication intake and schedules
- pain symptoms and pain level assessments
- other medical history information
- your child’s name, age, address, phone number and/or email
- your name, phone number and/or email and those of third parties (e.g., other family members, friends, healthcare providers)
The App will also allow you and/or your child to customize your child’s App avatar (character image) by selecting the avatar’s gender and skin tone and other appearance, fashion and style preferences.
We refer to information that you and/or your child enter into the App, including selections you and/or your child make within the App to customize the App avatar, as “User Content.” All User Content is stored on the mobile device used to access the App and is not shared with or accessible by us. However, the App facilitates the sharing of User Content (for example, your child’s pain symptoms and pain level assessments) with third parties (for example, your child’s healthcare provider) via email and/or text messaging. Specifically, you and/or your child may create an address book within the App that contains contact information of others that you and/or your child manually enter into the App. The address book functionality allows you and/or your child to share User Content via email and/or text messaging from the mobile device used to access the App with people in the address book. For this reason, we require your prior consent before your child may use the App.
Email: firstname.lastname@example.org; OR
Fax: 858-552-0876; OR
Mail: Sickle Cell Disease Foundation of California, Attn: Mobile App Services, 3602 Inland Empire Blvd b220, Ontario, CA 91764.
You will be asked to provide your name and email address on the VOICE Crisis Alert™ App Parental Consent Form. We collect this information in order to verify parental consent and communicate with you regarding your child’s use of the App. After we receive the signed consent form, we will send you a code by email that must be entered into the App to unlock it for your child. You must provide a valid email address to receive the activation code. We will retain the information you have provided in the consent form in order to later verify your identity or contact you regarding your child’s use of the App or any additional notice we may want to provide with regard to the App.